All About Sciton Cares

All About Sciton Cares with Lina Leon

Trish

Hello, listeners. It’s Trish Hammond here from the Transforming Bodies podcast. And today, I’m speaking with Lina Leon, who is the International Marketing Director from Sciton and we’re gonna talk about this innovative new program called Sciton Cares. So welcome Lina.

Lina

Hi, Trish. Thank you so much for having us over. We’re excited to be here with you today.

Trish

Lovely. Thank you so much. So tell me, so just recently, Sciton has actually launched a global network program to support families, and like tell me what it’s about. So it’s called Sciton Cares, but what actually is it? 

Lina

So Sciton Cares is a program that we just launched with our physicians around the world where we will be supporting families in need that have vascular conditions and need treatments for their kids and or individuals that may need treatments.

Trish

Okay. So what is a vascular like, what does that mean if they’re born with a vascular?

Lina

So right now we have kids that are born with port wine stains. So it’s a birthmark that normally you can see in the face or parts of the body. But right now, we’re concentrating more on birthmarks that are specifically for the face. Depending on the depth of the veins, these port wines can affect the pressure of the eye of the child or any other conditions around the face. So any other conditions around the face. So what we wanna do is to help these individuals and these kids to feel better about themselves and also continue being healthy as they grow with this condition in their faces.

 

Trish

So I didn’t realise if someone’s got a port because I’ve seen many port wine stains, so if someone’s got a port wine stain on their face, that can actually affect their vision in life as well.

Lina

Depending on the location of the port wine stain they can have a glaucoma rest of glaucoma. So in my case, and our family, our child was born with a port wine stain that will cover a part of the eye. So he needs to be checked once a year to make sure that the pressure of his eye is correct and we avoid glaucoma getting treatments around his port wine.

Trish

Well, so I’ve actually seen your son. I can’t even see that there ever was so because I’ve seen them before, but I can’t even see now that there ever was a port wine stain on his face. So he’s been having treatments for a while?

Lina

Yes. So he started at six months of the recommendation for families to get their kids to start the treatments, the younger, the better, and in us right now, he’s now thirteen, he has more than twenty treatments and he won’t need to continue having treatments for the rest of his life to control the the the flow of the vessels on his face.

Trish

Oh, okay. So it’s an ongoing thing as well. It’s not just something that you have one treatment to fix and it goes on, so it’s something that they have to do for the rest of their lives.

Lina

Yes. So it depends on a port wine and it again depends on the depth of the vessels. Some port wines are easier to treat than others. But most patients will need to continue having, for example, serious treatments, and then maybe later on, need you to follow our treatment once a year.

Trish

Fantastic. And so the slogan is like changing lives one treatment at a time. And that’s exactly what it is because it is life-changing. Isn’t it? I mean, it would have been like that for your son, hey.

Lina

It is a big life-changing. We have a lot of kids that have to live with the Pulleyard School, depending on the location of the birthmark and in effect, a child, a teenager so what we’re trying to do is to help these individuals in their lives and in making changes for the future. 

Trish

Okay, and so tell me how do people oh, look, how people have been getting involved? Because I know that there are obviously a lot of practitioners who are really excited about this because it gives them a chance to give back as well. So how does that work with, like, how are people volunteering? Or like, how have you found the people that are happy to do this?

Lina

So we are very excited that we were able to get a partnership with two different organisations, the Sturge- Weber Foundation and the Birthmark Foundation. Both of these organisations will help us to find these patients in these different countries that we are opening up as we receive doctors that are coming to be part of this program. The physician’s commitment is voluntary under work and to treat the patients for a period of time and we are creating this support network through the foundations. So the foundations will connect the patients with the physicians.

Trish

Okay. So the Sciton Cares is going to be like the overriding umbrella that’s going to actually connect the patients with the physicians who have I said, yes, I would love to be involved in this. Is that right?

Lina

Yeah. Correct. So we’re gonna have different ways to promote the program through our social media networks and also through the foundations were people that have and there are in these different countries they will be able to sign in for the program and then the doctors will evaluate and see if they are a patient that can be treated with our Sciton lasers.

Trish

Fantastic. So I was gonna ask you, it’s like, we were talking a bit more earlier on about how many babies are born with port wine stains and like do you have any information on that?

Lina

So on average for every thousand people three babies are born with a port wine. Not all port wines are on the face. I just wanna just clarify that. But right now, what we’re trying to do is just to support these babies and then these adults that maybe never had a treatment, so we can help them and support their condition. And at the same time, it just creates a better way to feel better about themselves.

Trish

And I think what’s great about it for me is the fact that, like, if people may not even know that there is something that they can do to fix something like that or to help something like that. Like, they might have a baby and it’s got a port wine stain, but they might not even know that there is something available to help that baby. Would that be right? It’s not something that I ever even imagined because of course I haven’t needed it, but could that possibly be right that not everybody would know that you could help with this?

Lina

So it depends on the country that you are in. Right now, physicians’ first recommendation for families like us is that we need to get treatment right away to avoid these different additional conditions that can come up out of a port wine stain in the case. But yes, it is correct. It may be in some countries. People don’t have the information or the resources to see how this can be treated and then maintain to avoid different conditions that can appear. 

Trish

And I love the fact that this is great because it’s a good way to bring awareness to people as well because, like, I remember, when I was younger looking at someone and thinking, oh my god, you know, what’s wrong? Like, they’ve got a dark side of their face or whatever, and I didn’t actually realise that it’s a, you know, it’s a thing, you know, which is really ignorant, but I remember when I was younger because I went to school with a young girl that had one on their face and we just always sort of thought, you know, what’s wrong with it? We didn’t actually understand that it’s you know, because it was kind of hidden under the carpet, you know, but it’s so good that it actually is out there and it can be worked on and helped.

Lina

We are very blessed to be in this time where lasers have done so much that we are able to help so many patients then with the support of our physicians right now, we are now going to be opening in four different countries to be able to start our program and help the patients in those regions.

Trish

Fantastic. And tell me, can you just briefly give us a little bit of a rundown of what it’s been like for you when your baby was born with a port wine stain? Like, you must have had an absolute heart attack.

Lina

So when he was born, I was in the dermatology world for a while. So when he was born, I immediately grabbed the phone and said, okay, he was born with a port wine. What would we need to do? What I was not aware of is that for the location of the birthmark where he was covering the part of his eye, he could have something additional that is called a Sturge-Weber syndrome. So Pablo was evaluated for a Sturge-Weber for the first month of his life and then this is a neurological condition that can affect babies when they’re growing so they can have seizures and some different neurological conditions that affect their development and how they are.

 

Trish

Okay. Well, can you just give us a bit of a rundown? So when your baby was born with a port wine stain, you must have had an absolute heart attack like what happened? How did you feel?

Lina

Immediately, we called the dermatologist, to get some guidance but what we were not aware of was that because of the location of his port wine stain covering part of the eye, he needed to be evaluated for Sturge-Weber syndrome. Sturge-Weber syndrome is a neurological condition in which babies can have a risk of glaucoma, seizures, and any intellectual disability so that is something that literally just the first thing that you do is to educate yourself right away to get into treatments and evaluations, to see where you are in depending of these conditions.

Trish

And so does that so he’s thirteen now. So he started his first treatment at the age of six months. Is that right?

Lina

Yes. So the earlier, the better the recommendation for the dermatologists to get treatment. So Pablo was evaluated for the Sturge-Weber for the first few months of his life and after he was allowed, we continued just with the treatments for the port wine stain. So far, he has had twenty treatments and now, he’s a teenager where he is managing his own journey. So he is more aware of the treatment that he prefers, and how to talk to the doctors. So our parents’ journey became his journey and we are just there advocating and we support him on his journey now.

Trish

I love that. And tell me, so is he gonna have to do what he has to do every year for the rest of his life? Is that something that he has to be aware of? Or does he need treatments more, like if he doesn’t have a treatment, does it come back? Or what’s that?

Lina

Right now, we’re in the process of his teenage years where he’s growing so we are doing more treatments because of that so the veins and the vessels are growing also. So the treatments that worked when he was younger, now we need to get back and control those little veins and those little vessels. So our goal is that after he finishes growing, then he will be just having maybe just a touch-up treatment once a year. But until he continues growing, we’ll have to continue maintaining these vessels that are just growing with him at the same time.

 

Trish

Fantastic. And I love the fact that Sciton’s doing this as a program because the fact is a lot of families may not be able to afford it, and this is a way that we can actually help the families that actually can’t afford it.

Lina

Yeah. Right now, our goal is to be able to support as many families as possible. And then we have our Sciton doctors signing in for the program and they will be having this information on their website. We’re gonna have it on the organisation’s website and then also in our social media channel so patients can — we can put the doctors in contact with the patients that are in need so they can be evaluated and see if the doctors can treat them in the regions and already the country that they are located.

Trish 

Fantastic. Look, I love it. I love the fact that like, that saying, I think, giving back more than you receive, it’s just so beautiful and that’s just another, you know, nothing to commend the fact that they’re taking this on, so well done to Sciton and well done to you for actually even introducing it’s a great idea.

Lina

We are very blessed that our executive team has supported this idea that it was initially a Family Mission and now become a company mission with the support of our physicians.

Trish 

Fantastic. It’s about to become a global mission by the sound of it as well.

Lina

Yes. We’re extremely excited about it. As we launch, we’ve been getting more calls about it and we are just ready to start working with the organisations and start finding the patience and begin our work.

Trish 

Fantastic. So look, look, thank you so much for talking to me today, Lina, that’s been really, really interesting. I’ve loved it because I know your boys, so it’s really, really great to understand the history behind it as well because I had no idea, so it’s just so interesting. So thank you so much for joining us today.

Lina

Thank you so much for having us over, and we’re looking forward to talking to you in the future about how we are doing with Sciton Cares.

 

Trish 

Fantastic. That’s great. And look, listen, if you do wanna find out more about this is something that you could be interested in, definitely reach out. Just DM me or flick me through an email and I will put you in touch with the Sciton Cares organisation so thank you so much.

Lina
Thank you.

 

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